Review Article - Pain Management and Palliative Care

Non-pharmacological symptom self-management in non-malignant chronic disease: A scoping review

Lindsay Farrant, Helen Buchanan, Clare Ellis-Smith, Olivia Gaunt, Liz Gwyther, Richard Harding, Rene Krause, Alexandra Moors, Niri Naidoo, Sonwabiso Ngcowa, Kennedy Nkhoma, Jae Eun Park, Klaus von Pressentin, Matthew Maddocks
African Journal of Primary Health Care & Family Medicine | Vol 17, No 1 | a5095 | DOI: https://doi.org/10.4102/phcfm.v17i1.5095 | © 2025 Lindsay Farrant, Helen Buchanan, Clare Ellis-Smith, Olivia Gaunt, Liz Gwyther, Richard Harding, Rene Krause, Alexandra Moors, Niri Naidoo, Sonwabiso Ngcowa, Kennedy Nkhoma, Jae Eun Park, Klaus von Pressentin, Matthew Maddocks | This work is licensed under CC Attribution 4.0
Submitted: 22 June 2025 | Published: 07 November 2025

About the author(s)

Lindsay Farrant, Department of Family Community and Emergency Care, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa
Helen Buchanan, Department of Health and Rehabilitation Sciences, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa
Clare Ellis-Smith, Cicely Saunders Institute of Palliative Care Policy and Rehabilitation, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King’s College London, London, United Kingdom
Olivia Gaunt, Cicely Saunders Institute of Palliative Care Policy and Rehabilitation, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King’s College London, London, United Kingdom
Liz Gwyther, Department of Family Community and Emergency Care, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa
Richard Harding, Department of Family Community and Emergency Care, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa; and, Cicely Saunders Institute of Palliative Care Policy and Rehabilitation, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King’s College London, London, United Kingdom
Rene Krause, Department of Family Community and Emergency Care, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa
Alexandra Moors, Department of Family Community and Emergency Care, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa
Niri Naidoo, Department of Health and Rehabilitation Sciences, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa
Sonwabiso Ngcowa, Department of Family Community and Emergency Care, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa
Kennedy Nkhoma, Cicely Saunders Institute of Palliative Care Policy and Rehabilitation, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King’s College London, London, United Kingdom
Jae Eun Park, Department of Family Community and Emergency Care, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa
Klaus von Pressentin, Department of Family Community and Emergency Care, Faculty Health Sciences, University of Cape Town, Cape Town, South Africa
Matthew Maddocks, Cicely Saunders Institute of Palliative Care Policy and Rehabilitation, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, King’s College London, London, United Kingdom

Abstract

Background: Patients with advanced non-malignant diseases experience pain, dyspnoea and fatigue, requiring a rehabilitation approach within palliative care.
Aim: To identify components of non-pharmacological interventions for symptom self-management for patients with non-malignant chronic disease.
Method: This scoping review identifies: (1) systematic reviews of symptom self-management interventions for breathlessness, pain and fatigue in chronic lung, heart, renal and liver disease; (2) primary studies in low- and middle-income countries to identify intervention components, contextual factors, facilitators and barriers to symptom self-management. Six databases were searched, records exported to Rayyan and deduplicated. Following screening for inclusion, extraction was conducted. We conducted a narrative synthesis of intervention components and implementation factors, and content analysis of barriers and facilitators to interventions.
Results: Thirty-one articles were included (21 systematic reviews and 10 primary studies). The populations studied had chronic lung disease (n = 19), heart disease (n = 12), chronic renal disease on dialysis (n = 2) and none had hepatic disease. The three most common intervention components were information, training and rehearsal for practical self-management activities and lifestyle support. Common patient barriers included motivation, adherence and health literacy, while facilitators encompassed knowledge, support and family involvement. The availability of healthcare workers can impact implementation, but remote access options should be considered.
Conclusion: Disease and management information for patients and their family members, along with support for home application, form the foundation for effective symptom self-management.
Contribution: Symptom self-management for non-malignant chronic diseases is uncommon in low-resource settings. This review outlines the necessary components and implementation considerations.


Keywords

symptoms; self-management; pain; dyspnoea; fatigue; non-pharmacological; chronic disease; palliative care; rehabilitation

Sustainable Development Goal

Goal 3: Good health and well-being

Metrics

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